Rhoda Walker

Rhoda has a background in community development and partnership working, developed throughout her career in local government. A long-standing CDHN member and the former Chair of the Rare Disease Partnership, she contributed to the development of the NI Action Plan for Rare Diseases. She is also an ambassador for Medics for Rare Disease, a charity raising awareness of rare conditions amongst the medical community and supports Ehlers Danlos Support UK to raise awareness of, and highlight the needs of those with Ehlers Danlos Syndrome, a condition that affects many members of her family. She was awarded an MBE in 2023 for Services to People with Rare Diseases. Rhoda is a member of the Patient Client Council and continues to volunteer for the rare disease community and her local regeneration group in Antrim. She is currently a freelance consultant for the third sector.